Got my MRI I results. They showed that there was significant tumor growth. I don't know exactly what that means. I don't know if that means it has happened faster than expected or if this has been pretty much as expected. The news that there is growth is not unexpected to me. As I said my left arm and leg are very uncoordinated and when symptoms pick up it's just naïve to think that nothing is wrong. So this is pretty much what I expected to hear. So I don't look at this as good news but just news. When we attached this device My Dr. said it may take some time before we knew if it was going to work. My doctors consulted when I started this with the understanding that things may get worse. They discussed what may be needed if that was the case. I don't know that we can say this therapy is not going to work based on this news. I'm not going to make guesses right now because I feel like that would really drive me crazy. I have to wait and hear what the smart people actually think. I should hear from my neurologist in Boston tomorrow, My oncologist early next week and from there we'll make a plan that I'll follow.
I am not taking it as good or bad news right now. Obviously I would have preferred to hear that there was no growth. I don't have a lot of answers right now. Still have to talk with my doctors about what we think the best treatment is. We will be in discussions next week about what we think the best course of action is. I'm not going to waste to guessing or speculating. I will keep pursuing treatments until they tell me I can't. There will be a next step I just don't know what that is right now.
Just so everyone understands, I will keep following and searching for treatments until they tell me I can't or my heart is no longer beating.