Well at least I know now why I had another seizure. As many of you probably have heard I have another tumor growth which has shown up. I just talked to my Oncologist at about 10 this morning so every thing is still really new.
What I am going to say is not easy to say and it does not mean that I giving in or giving up. The truth is the clock is now ticking. I’m trying to be realistic.
The chemotherapy that I was doing is not effective. If it was, another tumor would not have started to grow. Another surgery may be an option, I’m not sure at this point. My Oncologist would like to try radiation to see what it can do, but we did not do radiation in the first place because the site of the tumor was in the radiation field from last time and it is not proven effective to use multiple times in the same field.
I am seeing if I am eligible for a clinical trial at Duke. If so I would have another surgery so they could study the tumor and work up a vaccine to treat whatever cells were left after surgery. This seems like the option with the highest probability of having an impact, but it is by no means a sure thing and I may not even be a candidate.
I will continue to do whatever is reasonable to try to beat this but everyone should realize that the odds are not in my favor this time. My Neurologist and Oncologist, whom I have a lot of faith in, are out of reassuring answers regarding treatments that have worked for a large number of others. They are making suggestions about what they want to try.
None of this has been fair or pleasant. I came into this fight with my head held high and I plan on continuing that way and leaving that way. Part of that is continuing to fight and to try any treatment that seems reasonable. I don’t want to spend my time being sad or angry, even though I am. I’m so sorry if me saying this really hurts or upsets people but I just want everyone to know the truth about what’s going on.